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What's a "Rare Disease"?
What's a "Rare Disease"?
Rare diseases are chronic illnesses that can become disabling and life-shortening.
In the United States, any disease affecting less than 200,000 people is considered rare (Diseases are classified as rare depending on each nation's population and prevalence rate.)
The Impact
The Impact
An estimated 300+ million people are affected by rare diseases worldwide. There are about 7,000 rare diseases.
An estimated 300+ million people are affected by rare diseases worldwide. There are about 7,000 rare diseases.
Challenges Faced
Challenges Faced
Commonly noted rare patient troubles include: costly treatment, inaccessible treatment and specialized professionals, and long diagnostic odyssey (6-7 years to get accurate or any diagnosis.)
Common Pediatric Onset
Common Pediatric Onset
50% of rare diseases are pediatric onset, meaning they appear in children. 30% of those children don't live to see their 5th birthday.
All pediatric cancers are rare.
All pediatric cancers are rare.
Childhood cancers account for less than 1% of all cancers in the US.
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